Wednesday, November 02, 2005

Second opinion?

So I talked to the lady who runs the lupus support group today at length about the whole chemo business. She thinks we ought to get a second opinion, but M doesn't want to. She takes a drug called CellCept that is being used offlabel for lupus. It's a drug people take after organ transplant. However, she emailed a neurologist she knows and told him about M's symptoms, and the response was: "Take the chemo." She said to me several times in the course of conversation: "I know I do it this way, but I've never been as sick as your husband." I know she was trying to help, and she offered me her services, but Jesus Christ, hearing it said that way just killed me.

I held onto him for about half an hour tonight and just wept. Please don't take him away from me. I waited my whole life for him, and here he is, and he's sick. He's in bed right now sleeping like a log. He's worn out and exhausted, and I'm so scared and worried and feel so all alone. I'm afraid I'm losing the man I love. I wish I could do something for him. If I could take it away from him, I would.

On an up note, I wrote about 1,400 words for NaNoWriMo today on my lunch hour. Will try to do it again tomorrow. Man, my book sucks. ;)
Overthink
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